Leprosy mustn't be forgotten amid Covid crisis

Leprosy mustn't be forgotten amid Covid crisis

An Indonesian woman affected by leprosy holds up a blister pack of medicine in South Sumatra, Indonesia. (Photo: NLR)
An Indonesian woman affected by leprosy holds up a blister pack of medicine in South Sumatra, Indonesia. (Photo: NLR)

The 74th World Health Assembly (WHA) takes place from May 24 to June 1. This year's gathering is likely to be dominated by Covid-19, but here I want to talk about a different disease -- leprosy -- and a resolution that was adopted at the WHA exactly 30 years ago. This resolution called for the elimination of leprosy as a public health problem at the global level by the year 2000, with elimination defined as a prevalence rate of less than one case per 10,000 population. It was a landmark resolution for the time.

Leprosy, also known as Hansen's disease, is a chronic infectious disease caused by the bacillus Mycobacterium leprae. It mainly affects the skin and peripheral nerves and is said to be one of the oldest diseases in human history. Today an effective treatment exists in the form of multidrug therapy (MDT) and with early detection and treatment the disease is completely curable.

But if treatment is delayed, leprosy can cause impairments to the skin, nerves, face, hands and feet, and lead to permanent disability. Together with deep-seated fears and misperceptions about the disease, this has subjected persons affected by leprosy as well as their family members to severe discrimination, which continues to this day.

Sadly, amid the coronavirus pandemic, we can see parallels between the discrimination and hostility toward Covid-19 patients, their families and health personnel that has been reported in different parts of the world and society's attitudes toward leprosy.

Following the 1991 WHA resolution, elimination of leprosy as a public health problem was successfully achieved at the global level by the end of 2000, and almost all countries, including Thailand, have replicated that success at the national level. Unfortunately, this does not mean that leprosy has disappeared.

Each year, around 200,000 new cases of leprosy are reported each year -- Thailand sees over 100 cases -- and there are still endemic areas and scattered hot spots of leprosy in many countries. Some 3-4 million people are thought to be living with visible impairments or deformities due to leprosy. Meanwhile, the persistence of stigma and discrimination toward persons affected by leprosy can inhibit people from seeking treatment.

Since becoming the World Health Organization (WHO) Goodwill Ambassador for Leprosy Elimination in 2001, I have visited some 120 countries and observed the situation on the ground for myself. This has led me to think of leprosy in terms of a motorcycle: the front wheel symbolises curing the disease, and the back wheel represents eliminating discrimination. Unless both wheels are turning together, we will not reach our ultimate goal of zero leprosy.

As regards the front wheel, the WHO recently published its new Global Leprosy Strategy 2021-2030, which includes the ambitious targets of zero leprosy patients in 120 countries and a 70% decrease in new cases detected globally by 2030. In order to achieve these targets, there will need to be commitments and financial support from governments; this is not something the WHO can achieve on its own.

Concerning the rear wheel, I have worked hard to have leprosy recognised internationally as a human rights issue since the early 2000s when I first approached the Office of the UN High Commissioner for Human Rights.

One result has been the resolution on elimination of discrimination against persons affected by leprosy and their family members, adopted by the UN General Assembly in 2010. But the real measure of success will be when principles and guidelines accompanying the resolution are fully implemented.

For this to happen, it will be necessary to abolish or amend more than 100 laws that discriminate on grounds of leprosy, some of which are still in place in Thailand.

Over the past half-century, the dedication of a great many people has brought us a step closer to a world without leprosy, but our work is not yet done. Especially now, during the Covid-19 pandemic, it is important that we do not lose sight of leprosy and that we continue to build on the progress we have made. Recalling how countries decided 30 years ago to unite in a fight against leprosy, let's redouble our efforts and complete the job of vanquishing a disease that has been a common enemy of humankind for millennia.


Mr Yohei Sasakawa is WHO Goodwill Ambassador for Leprosy Elimination and Japanese Government Goodwill Ambassador for the Human Rights of Persons Affected by Leprosy and Chairman of The Nippon Foundation.



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